At Sobi, we recognise the importance of social media in communication, to stay close to our community and hear your voices.
We do our best to answer your questions as quickly as we can and respond responsibly.
However, we operate in a highly regulated industry and we can't engage in certain topics on our channels. We want to make sure that the discussions that take place on our channels stay on topic and are constructive.
We request that you avoid posting comments that include:
• Medical advice
• Discriminatory or derogatory comments
• Politics and religion
• Profanity, vulgarity, graphic images or personal attacks
• Off-topic subjects that may be considered spam or advertising
• Excessively redundant comments or suspected bot engagements
• Promotion of illegal activity
• Infringement on copyrights or trademarks
• Mentions any medicinal product marketed by Sobi or any other pharmaceutical company
• Unsupported accusations or material from unverified sources
• Promotion of services or medicines.
We may not be allowed to respond and we reserve the right to remove or hide any comments that include any of the topics listed above. We may block and/or remove any user who does not comply with these community guidelines.
Patient safety is a top priority for Sobi.
If you have experienced an adverse event or think you may be experiencing an adverse event, you should seek advice from a healthcare professional.
We encourage the reporting of any side effects experienced while taking a Sobi medicine by contacting us here: [email protected]
If you do share an adverse event with us via social media, we may follow up with you and ask for more information in order to report the event. We may remove your post to protect your privacy.
For any medicine complaints please contact [email protected]
If you have questions regarding a medicine, please consult your healthcare provider first or get in touch with us by contacting your local Sobi office (list here) or [email protected]
Please note that social media channels also have access to information you share with us through their platform. For more details, please consult their Privacy Policy
For additional information about privacy at Sobi, read our Privacy Policy
Thank you for reading and being a part of the community.
We are a global biopharma company unlocking the potential of breakthrough innovations, transforming everyday life for people living with rare diseases.
Our therapies are concentrated within the areas of Haematology, Immunology and Specialty Care.
We contribute to societies by improving access to treatment of rare diseases.
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Find out more about our business and financial performance.
Every day, we work actively to find better ways to understand and meet patient needs.