Nurture education
What we commit to
We will continue to create and provide rigorous information about our products to the scientific community, and enable knowledge sharing with people living with rare diseases in a clear and accessible way.
We commit to developing even more patient-centred and comprehensive unbranded educational resources for patients and caregivers via co-creation with the patient community, to make a difference for individuals living with rare diseases.
What we have done so far
Sobi provides educational patient-centred resources to patients and healthcare providers to increase understanding of rare diseases and available treatments, making a significant difference in the lives of individuals with rare diseases.1
Furthermore, Sobi provides and co-creates with the patient community educational tools to raise awareness about the burden of rare diseases and the patient conditions, needs and priorities.
Sobi also publishes data and provides updates on research at major rare diseases, haematology, immunology and specialty care congresses.2
Measurement
We will measure impact through:
- Number of educational materials/tools delivered to physicians
- Number of educational materials delivered to patients via treating physicians
- Number of co-created non-branded educational tools
- Digitally trackable indicators, such as downloads and engagement with web pages
Involvement
The Sobi departments involved are:
- Medical
- Commercial
- Patient Engagement
- Compliance
- Legal (depending on project)
References:
- Vas Experts. VAS (Value-Added Service Providers). Available at: https://vasexperts.com/resources/glossary/vas-value-added-service-providers/.
- Sobi. Investors. Available at: https://www.sobi.com/en/investors.