Connect patients to better healthcare
What we commit to
We will continue to support patient organisations and other credible partners which run humanitarian aid programmes in the field of health, demonstrating Sobi’s dedication to improving healthcare access and empowering patients.
Our support in the World Federation of Hemophilia (WFH) Humanitarian Aid Program is just one example of our current involvement in humanitarian programmes which make a positive impact on global health.
What we have done so far
More than 75 percent of people with haemophilia around the world have limited or no access to diagnosis and treatment, particularly in the developing world. The WFH Humanitarian Aid Program helps address the lack of access to care and treatment by providing support for people with inherited bleeding disorders in 112 countries. By providing a more predictable and sustainable flow of humanitarian aid donations of Factor VIII and Factor IX, the programme allows for people living with haemophilia to receive consistent and reliable access to treatment and care.1
In 2020, Sobi and Sanofi announced the agreement to extend their support of the programme by an additional donation of up to 500 million international unit (IU) of Factor VIII and Factor IX for humanitarian aid, thereby fulfilling the 2014 pledge to donate up to an unprecedented 1 billion IU of Factor VIII and Factor IX over a 10-year period.1
Sobi’s commitment extends beyond donations to include training programmes for care providers and patients, building local capacity for better diagnosis and long-term sustainable changes.2
Measurement
We will measure impact through:
- Number of partnerships created/continued
Involvement
The Sobi departments involved are:
- Medical
- Value and Access
- Patient Engagement
- Compliance
- Legal
- Executive Committee (depending on project)
References:
- Sobi. Annual and Sustainability Report 2022. Available at: https://www.sobi.com/sites/default/files/pr/202303312874-1.pdf.
- Sobi. Humanitarian Aid. Available at: https://www.sobi.com/en/humanitarian-aid.