NURTURE patient-driven models
What we commit to
We will continue to acknowledge and develop the patient engagement dimension of acquisitions, reaching out for patient organisations and communities as early as we can. We will continue to implement processes to train all employees on patient-centred communication, empathy and understanding.
We commit to actively seeking patient expert input in the development and delivery of our programmes, by leveraging technology to facilitate ongoing communication and feedback in every new acquisition. Furthermore, we are committed to providing educational resources and personalised support services to empower people living with rare diseases and enhance their treatment journey in our newly-acquired disease area fields. By embedding this patient-centric approach in our acquisition strategy, we strive to drive innovation, improve patient outcomes and, ultimately, transform lives.
What we have done so far
At Sobi, we believe that patient engagement is not just a goal, but a guiding principle in every new acquisition. With each acquisition, we aim to start integrating a comprehensive patient engagement strategy from the outset. This strategy is designed to ensure that the needs and experiences of patients are at the forefront of our decision-making process.
Sobi has implemented the integration of questions about patient engagement in relation to strategic visionary leadership as part of a guide to be used in interviewing candidates for senior leadership roles. Patient focus is also one of the key criteria for rating managers in their hiring process.
All the newly-hired employees at Sobi must follow Patient Engagement Basics training and undergo an assessment. 525 people worldwide completed the training in 2023.1
Measurement
We will measure impact through:
- Number of acquisitions accompanied by a clear patient engagement plan
Involvement
The Sobi departments involved are:
- Patient Engagement
- Human Resources
- Environment Sustainability and Governance
- Compliance
- Medical
- Patient Access
- Legal (depending on project)
- Pharmacovigilance
References:
- Sobi. Annual and Sustainability Report 2022. Available at: https://www.sobi.com/en/financial-reports/sobir-publishesannual-
and-sustainability-report-2022.