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Innovate to spread awareness

What we commit to

We will continue to support innovative disease awareness campaigns, optimising the use of new technologies to improve disease management and patient outcomes in rare diseases.

What we have done so far

Sobi is recognised as a global leader in providing access to innovative treatments that transform the lives of people with rare diseases.1

We are at the forefront of innovation through our awareness campaigns. We utilise a variety of platforms and strategies to educate the public about rare diseases, their impact and available treatments.

These campaigns not only increase understanding but also empower people living with rare diseases and caregivers with knowledge.

Measurement

We will measure impact through:

  • Number of innovative campaigns developed
  • Number of website visits/downloads

Involvement

The Sobi departments involved are:

  • Digital
  • Patient Engagement
  • Compliance
  • Legal
  • Medical (depending on project)
  1. Nature. Leading the Way in Rare Disease. Available at: https://www.nature.com/articles/d43747-020-00680-6.