More Than You Can Imagine – Rare Disease Day 2025
Every year, Rare Disease Day serves as a global call to action, reminding us of the 300 million people worldwide who live with a rare disease. This number highlights the widespread impact of rare diseases despite their individual rarity. While these conditions are uncommon, their impact is greater than most can imagine—affecting families, healthcare systems, and entire communities.
At Sobi, we are committed to ensuring that rare disease patients receive the care, advocacy, and treatment access they deserve. This year, we have amplified our message through Unite4Rare, reinforcing the importance of global partnerships and long-term commitment.
Rare Disease Day, celebrated on the last day of February, is more than a single moment—it is a movement. By raising awareness, supporting innovation, and driving change, we work towards a world where every rare disease patient is seen, heard, and supported.
A Future Beyond Imagination
For many, living with a rare disease means confronting daily challenges that go unseen by the world. It means searching for answers, navigating complex healthcare systems, and overcoming barriers to access. But beyond these challenges, there is also hope—hope in the breakthroughs made possible by scientific advancements, in the power of strong communities, and in the dedication of those who refuse to accept the status quo.
At Sobi, we see More Than You Can Imagine as a reflection of what’s possible when we work together. From driving innovation through strategic partnerships and scientific advancements to delivering tailored treatment solutions to global collaborations, we are committed to pushing boundaries and redefining what’s achievable for rare disease patients worldwide.
Unite4Rare: Extending Our Commitment Beyond Rare Disease Day
While Rare Disease Day is a pivotal moment to raise awareness, our dedication to the rare disease community extends far beyond a single day. Unite4Rare, Sobi’s ongoing initiative, strengthens partnerships with patient communities, advocacy groups, and healthcare professionals to ensure continued progress in treatment, access, and support.
Through Unite4Rare, we:
- Foster collaboration across borders to accelerate research and treatment development.
- Support advocacy efforts that drive meaningful policy change and expand patient access.
- Empower individuals and families with resources, education, and a global network of support.
Read more about Unite4Rare here
Join Us in Taking Action
Awareness is just the beginning. True change happens when we move beyond recognition and take tangible steps toward a future where every person with a rare disease has access to the care, support, and treatments they need.
This Rare Disease Day, we invite you to be part of the movement:
- Learn more about the realities of living with a rare disease.
- Engage in conversations—listen to patient stories and share their voices.
Together, we can create a future that is not just imagined but fully realized!
We provide access to innovative treatments that transform life for people.
Our therapies are concentrated within the areas of Haematology, Immunology and Specialty Care.
We contribute to societies by improving access to treatment of rare diseases.
Every day, we work actively to find better ways to understand and meet patient needs.
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