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Innovate to spread awareness

What we commit to

We will continue to support innovative disease awareness campaigns, optimising the use of new technologies to improve disease management and patient outcomes in rare diseases.

What we have done so far

Sobi is recognised as a global leader in providing access to innovative treatments that transform the lives of people with Rare Diseases.

Sobi is at the forefront of innovation through its awareness campaigns. We utilise a variety of platforms and strategies to educate the public about Rare Diseases, their impact and the available treatments. These campaigns not only increase understanding and empathy but also empower people living with Rare Diseases and caregivers with knowledge. 



In 2025, we created and co-created

414

innovative materials and projects for patients’ benefit.

Measurement

We will measure impact through:

  • Number of innovative initiatives delivered (Formats include added value, channels, dissemination, use of new technologies etc...)

Involvement

The Sobi departments involved are:

  • Digital
  • Patient Engagement
  • Compliance
  • Legal
  • Medical (depending on project)