Nurture education
What we commit to
We will continue to create and provide rigorous information about our products to the scientific community, and enable knowledge sharing with people living with rare diseases in a clear and accessible way.
We commit to developing even more patient-centred and comprehensive unbranded educational resources for patients and caregivers via co-creation with the patient community, to make a difference for individuals living with rare diseases.
What we have done so far
Sobi provides educational patient centred resources to patients and healthcare providers to increase understanding of Rare Diseases and available treatments, making a significant difference in the lives of individuals with Rare Diseases.
Sobi provides and co-creates with the Patient Community educational tools to raise awareness about the burden of Rare Diseases and patient conditions, needs and priorities.
In 2025
1415
patient materials and projects were created and co-created to foster reliable education for patient communities
Measurement
We will measure impact through:
- Number of new educational materials and projects produced for patients
- Number of of digitally trackable indicators (if available)
Involvement
The Sobi departments involved are:
- Medical
- Patient Engagement
- Compliance
- Legal (depending on project)