Collaborate and co-create
What we commit to
We will continue our transparency in current and future partnerships with patients and co-creating based on priorities and challenges of different patient communities in a mutually respectful, equitable manner.
We will endeavour to involve patient experts as early as Sobi’s business model allows it. We commit to acknowledging, respecting and valuing the knowledge and expertise that patient experts bring to the table in the co-creation process.
We will evaluate and adapt our approach to patient expert co-creation on an ongoing basis, striving for continuous improvement.
What we have done so far
Sobi actively co-creates with patients through initiatives such as the establishment of Patient Councils, which provide valuable insights into patient oriented initiatives, and the production and execution of awareness campaigns that highlight the challenges faced by individuals with Rare Diseases.
In 2025, we co-created
443
programmes and projects with patients, leveraging among others the input collected in 13 Patient Councils
Measurement
We will measure impact through:
- Co-created materials, programmes or events
Involvement
The Sobi departments involved are:
- Patient Engagement
- Compliance
- Medical
- Legal (depending on project)