Collaborate to improve dialogue and outcomes
What we commit to
We aim to foster patient-healthcare professional dialogue, education and a decision-making process that prioritises real patients’ real needs and goals.
We will continue to advocate for IDM in all aspects of our work, ensuring that people living with rare diseases are active participants in discussions where shared decisions about their care are made.
We commit to creating more opportunities for open, constructive dialogue with the patient community, seeking their input and feedback on a regular basis.
What we have done so far
Sobi has consistently collaborated with the Patient Community to champion Informed Decision Making, firmly believing in the power of this approach to enhance patient care and outcomes. Award-winning co-created patient and HCP campaigns, like Find Your Balance and Ask Your Patient, are examples of how Sobi has shared stories of individuals living with ITP and co-created discussion guides, checklists and other useful explainers on how to actively participate in patient-HCP discussions.
In 2025, we created and co-created
54
materials and projects dedicated to fostering Shared (Informed) Decision Making.
Measurement
We will measure impact through:
- Number of new or continued solutions provided in collaboration with the Patient Community on Shared (Informed) Decision Making
Involvement
The Sobi departments involved are:
- Patient Engagement
- Compliance
- Legal
- Medical (depending on project)