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Mission and Vision

Patient organizations provide services and information to patients, caregivers and their families as well as provide a support network for people having similar experiences.

At Sobi, we partner and support a wide range of patient organizations across all brands to achieve the common goal of advancing the best outcomes for patients living with rare diseases and medical conditions (research, awareness, education, and access to treatment, etc.). Patient Advocacy supports patient organizations enabling them to carry out the vital work on behalf of the constituencies they represent.