By using this website, you agree that we may use any information you have given in the following way:

Personal data - We may collect personally identifiable information, such as names, addresses, telephone numbers and email addresses only when voluntarily provided by you when you register or otherwise voluntarily submit information to us. Some of this information may relate to your health, which is particularly sensitive.

Data controller – Swedish Orphan Biovitrum AB (publ) (“Sobi”), will collect your information as controller of the database.

How we will use your personal information - By providing your personal information, you agree that, where it is permitted by local law or where you have agreed to receiving these communications from us, we may use the information:

  • to respond to your requests
  • to improve our level of service
  • to comply with local laws, for example reporting adverse event information
  • to consider your application for employment
  • for our own administrative and quality assurance purposes
  • for other purposes that may be detailed on the website or mobile application or otherwise agreed between us

We will not use your personal information for marketing activities unless you have explicitly consented to receive marketing communications from us.

Disclosures - Only Sobi will have access to your information. We may use third party processors to conduct research, process information or maintain websites, content, or programmes on our behalf, but your information will not be disclosed to any other third parties.

We will retain your information only for the period necessary to fulfil the purposes outlined in this Privacy Statement unless a longer retention period is required by law. You will at any time have the right to access your Data, simply write to us using the email address: