Policy on Interaction with Patient Organisations

Sobi's Policy on Interaction with Patient Organisations builds on the Sobi Code of Conduct & Ethics, which was launched in January 2013 and which each employee is asked to read and sign off on, on an annual basis.  The Policy is an important element part of our on-going programme of transparently articulating and documenting our codes of conduct and ethics at Sobi.

Patient organisations we support

We recognise the importance of learning from patients and their families about the challenges they face, and the success and limitations of their current treatment options, in order to develop and deliver treatments that help meet their needs.

Collaboration is an integral part of our research, ­clinical programmes, patient access and pricing model. We support and partner with a wide range of patient organisations, both nationally and regionally, to reach the common goal of achieving the best patient outcomes. We do this by conducting research and raising awareness, and by working collaboratively with all stakeholders, including governments and healthcare systems. By working this way, we believe that we can not only bring treatments that will make a difference but that will reach the patients in a timely and sustain­able way.

All interactions with patient organisations are made public here, on our website. 

2016 Activities

2014-2015 Activities 

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